Tag Archives: autoimmune disease

Personal Update

So, life has been a lot better since my last MS Ocrevus dose. I had severe fatigue for weeks afterwards but now I just have my everyday normal fatigue. I can function on a bit more of a reasonable level and even though I’m tired most of the time I find coffee and stimulating activities (Youtube, Netflix, Gaming, Hulu) to be quite helpful. I hate napping nowadays so that’s something I tend to try and avoid it if possible.

I have a roomate/best friend that is into a lot of great shows. We recently binged MTV’s “Catfish” together which always makes me laugh. I’m unsure if it’s faked part of the time because I wonder how in the world they find these individuals. Regardless, it’s entertaining.

Recently I’ve been reading a book called “My Sister The Serial Killer” by Oyinkan Braithwaite. The plot involves a woman who has a sister that kills her boyfriends. She works at a healthcare facility and knows how to clean up after her kills. I usually read non-fiction but this book is a good change.

My MS seems to be currently stabilized which is exciting, my next MRI will hopefully go well with no new lesions. I’m blessed everyday I wake up and don’t take good days for granted. Every day is a new beginning filled with endless obstacles and possibilities. Some days are more painful than others but at the end of the day I’m glad to be who I am. You should be glad to be the person that you are too.

-Rebecca Elizabeth (A Punk With MS)

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MS; Fight or Flight?

When something traumatic happens, every human being in existence has a fight or flight response. To learn more about the psychological definition you can click here

This could be for extreme circumstances but in this instance, I’m talking about MS. In regards to my own MS, the personal response I have is to fight. To run away could mean deterioration of my health and my well being.  Not everyone has this particular response which brings me to an extreme sadness to think about. I wish there was a way to reach out to every single person who is in that emotional position. MS is not the end of the world. I learned this from my mother, who has had an MS diagnosis since I was 5 years old. Not being raised with that mindset could have made me a completely different person, and for that I am grateful. I was exposed to the reality of it. My mother didn’t ever “hide” it from me. Some parents may not agree with this type of parenting but for me, it saved my life and my future.

If you feel like running from your diagnosis it could mean that your future will be that much tougher. Take care of yourself, know that the treatments that are available will improve your quality of life. I know doctors appointments are a pain (we have so many!) but the end result will be worth it, I promise.

With Love,

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Rebecca Elizabeth (A Punk With MS)

 

 

 

 

Marijuana and the Stigma that Surrounds it

Okay, so we hear all kinds of things about marijuana in our everyday lives (especially lately with legalization across the nation). Parents across the USA fear for their teens and fear  the possibility of their younger children somehow getting a hold of the plant.  Major media outlets such as CBS news have gotten on the reefer madness hysteria bandwagon  about a rare syndrome that has been around since the beginning of time for marijuana users. The syndrome is easily halted by stopping marijuana use and even taking a hot shower.  All that this type of media exposure is doing is putting nothing but fear into people about marijuana’s legalization movement when the plant itself helps people more than harms them. I can’t think of any situation where marijuana is harmful to someone.  The DEA even recently put CBD on the same list as other Schedule 1 drugs (which includes heroin and marijuana) CBD is from the marijuana plant but does not get you high, it relieves pain. Will the federal government ever accept the fact that a plant from the earth isn’t as harmful as alcohol or opiates?

There may still be a war against the federal legalization of marijuana but many people agree on one thing; other parts of the world have legalized it and now it’s time that the U.S.A. followed.

For an example, I’m a 25 almost 26 year old woman with Multiple Sclerosis.If you have no idea what Multiple Sclerosis is, click here. Marijuana doesn’t just help my muscle spasms and nerve pain, it has also stopped a lot of my P.T.S.D. symptoms.  It slows down my racing thoughts and  gives me a chance to think before acting irrationally.  This miracle plant has gotten me off muscle relaxants and has given me a chance at a better life.

I live in the state of Maine and I am blessed to have a medical marijuana card, but our Governor Paul Lepage is determined to try his best to halt recreational use another year against the will of Maine voters. This means if it doesn’t get legalized recreationally, i’ll have to pay a lot of money to renew my medical marijuana card this year and pay more for something at the dispensary that I could otherwise legally grow myself for less cost.

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Marijuana doesn’t only help with MS, it helps with many symptoms of Parkinson’s Disease,  Cancer, Lupus, Lyme Disease, and everyday chronic pain. There are many other conditions it helps, but to list them all would take a century.

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If you know anyone who is misinformed on the benefits of marijuana, step up and speak out. This is a way that you can inform them (or even possibly change their mind on the topic).  With a lot of hope and advocating as much as possible on the topic, we can get one more step towards legalization.

-Rebecca Elizabeth A Punk with MS