Tag Archives: blogging

Learning to Love Yourself

Recently I have gotten myself out of a relationship, and have been faced with new obstacles. Loving myself is one of them. If you can’t love yourself how can you truly love another person?

Self care is so important, loving yourself is necessary.

Where does one begin?

Reach out to friends and family for support, and learn to love spending time with yourself. Some people have difficulty with this because they’re left with their own thoughts. It can be a challenge.

I have a mood disorder (BPD/Bipolar) that effects me greatly. I try to occupy myself with music and things I enjoy (like photo editing) and to put makeup on because it makes me feel beautiful. I wear clothes that make me feel good as well.

Again, SELF CARE.

when you take care of yourself you begin to bloom and love yourself more everyday.

It’s a journey but one you are not alone on. [:

To whoever is reading this right now, I hope you find true happiness within. I am hoping to find happiness within me too.

With love,

-Rebecca Elizabeth (A Punk With MS)

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Personal Update

So, life has been a lot better since my last MS Ocrevus dose. I had severe fatigue for weeks afterwards but now I just have my everyday normal fatigue. I can function on a bit more of a reasonable level and even though I’m tired most of the time I find coffee and stimulating activities (Youtube, Netflix, Gaming, Hulu) to be quite helpful. I hate napping nowadays so that’s something I tend to try and avoid it if possible.

I have a roomate/best friend that is into a lot of great shows. We recently binged MTV’s “Catfish” together which always makes me laugh. I’m unsure if it’s faked part of the time because I wonder how in the world they find these individuals. Regardless, it’s entertaining.

Recently I’ve been reading a book called “My Sister The Serial Killer” by Oyinkan Braithwaite. The plot involves a woman who has a sister that kills her boyfriends. She works at a healthcare facility and knows how to clean up after her kills. I usually read non-fiction but this book is a good change.

My MS seems to be currently stabilized which is exciting, my next MRI will hopefully go well with no new lesions. I’m blessed everyday I wake up and don’t take good days for granted. Every day is a new beginning filled with endless obstacles and possibilities. Some days are more painful than others but at the end of the day I’m glad to be who I am. You should be glad to be the person that you are too.

-Rebecca Elizabeth (A Punk With MS)

MS and Mental Health: An Unspoken Bridge

There’s a common misconception that Mental Health effects just the brain, not other parts of the body. Did you know that Multiple Sclerosis can be aggravated by mental health issues?

How does this happen? Stress. 

Stress causes an inflammatory response in MS patients and should always be taken seriously. When someone is having a mental health episode their body immediately is heightened with stress whether they have anxiety, depression, PTSD, or any other diagnosis. This can cause flare-ups and even possibly an MS relapse.

What can we do to help ourselves stay on track? When someone with MS is being treated with medication for a mental health diagnosis it’s important to have open communication between their psychiatrist and neurologist. Steroids and MS meds can throw off someone’s emotional state of mind so it’s good to be monitored by both healthcare providers especially if they are on a new MS medication. This will reassure the patient that their body and their mind are both being taken care of properly.

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A lot of healthcare providers are simply unaware that this is such a struggle for many of us. The way I’ve worded it to my psychiatrist is that when my body is in distress it stresses out my mind, and when my mind is in distress it stresses out my body. It’s an endless cycle that can be definitely frustrating. It makes our bodies ache, and can make it difficult for us to go through our day to day routines.

The battle between the body and the mind is a long and tough battle but knowing what to be aware of is always a way to keep yourself safe. Please be sure to reach out to someone if you are ever struggling.

-Becca Elizabeth (A Punk With MS)

Season Changes.

MS and the heat have been quite the unfriendly combo to my body. When the humidity gets high I usually hermit out in the comfort of my air-conditioned living room. Fall being soon is quite the relief to me (as it is probably to some of my fellow msers too)

 

For those who don’t know, people with MS are usually hot/cold sensitive and lack temperature regulation in their bodies. If a room is too hot or too cold be sure to let your MS friend know so they won’t overheat or freeze. For me personally I really can’t tell when a room is too hot/cold or if it’s just me. I even have difficulty when it comes to shower temperature. I have to emphasize: not everyone with MS has this symptom but a lot of us do.

Between Therapy, self care, and doing my best not to go completely insane I’ve had my hands full.

Despite of our hardships with weather; I decided to make a list of the little things that are enjoyable especially during a day when the temperature is too extreme for you to go anywhere.

Netflix/YouTube (I’m huge on Rhett and Link lately. I also have a huge documentary kick going on)

Coffee. Nectar of the gods.

Watching the leaves turn color (I live in beautiful New England so this is highly enjoyable)

Sitting on the couch while listening to an audiobook

Craft. Make jewelry, crochet, or pick up a different hands-on activity.

Take a nap. Who doesn’t love naps?

Have a horror movie marathon with snacks.

Write poetry or draw something you’ve been thinking about a lot.

Start a journal.

Bake homemade bread or pastries.

I hope these ideas help. Please be sure to rest and take care of yourselves especially through the upcoming weather changes. Your body will ache and maybe go haywire for a bit but everything will be okay ❤ When winter strikes be sure to come back and read this list. Staying inside to to avoid hot/cold sensitivity is the absolute worst. It can get really boring.

-Rebecca Elizabeth (A Punk With MS)

 

 

 

 

Hope.

Multiple Sclerosis is terrifying. It’s lack of control. You may wonder how to gain control of your life back. The first step is taking a deep breath and realizing that no matter how rough things get you still have a purpose in life. The depression from this struggle can be at an all-time high sometimes. Don’t let it beat you. Don’t let it win.

Be brave for your children and your significant other. If you have neither than be brave for your pets! In all honesty, the most important person that you need to be brave for is yourself. You can overcome this and you can get through this. Focus on a new project, enjoy the summer breeze, look around you and remind yourself of the beauties of being alive.

Our bodies are attacking itself but that doesn’t mean that we need to stop living. Realize your limits and reach for the stars. Don’t think that you aren’t capable of something great.

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Here’s a task. Every day I want you to find something beautiful around you. Look at it. Indulge in it. Allow it to turn your vision into something less dark. You can do this.

 

With Love,

-Rebecca Elizabeth ( A Punk With MS)

Gluten-Free/Dairy-Free Banana Bread

Here is an easy recipe for Gluten-Free/Dairy-Free Banana bread that I tweaked from Pinterest (I added my own ingredients as a substitute!) I was nervous about doing this at first, but it came out perfect! It does NOT need to rise before being put into the oven (the baking soda in the recipe will help this as it heats up)

Ingredients:

-1 cup Bananas

-2 eggs (room temperature)

-2/3 cup Almond Milk (or any non-dairy milk of your choice)

-1/3 cup Coconut Oil

-2 Cups Gluten-Free Flour (if your Gluten-Free flour doesn’t have Xanthan Gum in it, then add 3/4 tsp of Xanthan Gum to this recipe)

-1/2 cup of Cane Sugar

-1/2 tsp Sea Salt

-1 tsp Vanilla Extract

1/2 tsp baking soda

-1 tsp Baking Powder

Add 1/2 cup of your preferred nut to make the banana bread nutty!

Preheat your oven to 350 degrees. Mix together your sugar, baking powder, baking soda, Gluten-Free Flour, Sea Salt, nuts (optional), and Xanthan Gum (add this only if your flour does not include this ingredient) together in one bowl.

Get out a second bowl. Add your eggs, vanilla extract, coconut oil, non-dairy milk, and mashed bananas into this bowl. make sure to mix the ingredients together well.

Now, mix both bowls of ingredients in the same bowl together.

Once your ingredients are all mixed together, pre-grease a bread loaf pan and fill it with the batter.

Put the bread loaf in the oven for 45-55 minutes (this depends on the oven, mine took 45 minutes to bake) Check it with a toothpick to be sure it is fully cooked.

Once your banana bread is cooked, take it out of the oven and place it where it can cool down for 15 minutes.

Cut, eat, and enjoy! Be sure to wrap it tightly once you are done to help keep it fresh for a couple of days. Feel free to freeze whatever you do not use!

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-Rebecca Elizabeth A Punk With MS

 

 

 

 

The Old Me, A Memoir

I miss the days where I didn’t have to pay attention to what I ate, or how hard I pushed myself.

I miss the times where I bathed in the sun with not a care in the world. Nowadays when I’m in the heat too long, I overheat and feel ill.

I miss not having so many doctor’s appointments and having a completely open schedule to do as I please during the days I didn’t have to work.

I miss working a lot.

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I miss the days when my body would not attack itself, the days without dealing with one migraine after another, and the days without having to take so many pills.

Today I say goodbye to the old me, and focus on today the best that I can. I will forever miss the old me, but a part of her will always remain. You can say goodbye to the old you too, it doesn’t mean that you have to completely forget her/him. Take care of yourself and try to accept your current situation  (as tough as it may be.) Dwelling on who you used to be all the time can reopen old wounds and cause you even more unnecessary pain. You can do it, I believe in you.

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– Rebecca Elizabeth (A Punk With MS)