Tag Archives: encouragement

MS and Mental Health: An Unspoken Bridge

There’s a common misconception that Mental Health effects just the brain, not other parts of the body. Did you know that Multiple Sclerosis can be aggravated by mental health issues?

How does this happen? Stress. 

Stress causes an inflammatory response in MS patients and should always be taken seriously. When someone is having a mental health episode their body immediately is heightened with stress whether they have anxiety, depression, PTSD, or any other diagnosis. This can cause flare-ups and even possibly an MS relapse.

What can we do to help ourselves stay on track? When someone with MS is being treated with medication for a mental health diagnosis it’s important to have open communication between their psychiatrist and neurologist. Steroids and MS meds can throw off someone’s emotional state of mind so it’s good to be monitored by both healthcare providers especially if they are on a new MS medication. This will reassure the patient that their body and their mind are both being taken care of properly.

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A lot of healthcare providers are simply unaware that this is such a struggle for many of us. The way I’ve worded it to my psychiatrist is that when my body is in distress it stresses out my mind, and when my mind is in distress it stresses out my body. It’s an endless cycle that can be definitely frustrating. It makes our bodies ache, and can make it difficult for us to go through our day to day routines.

The battle between the body and the mind is a long and tough battle but knowing what to be aware of is always a way to keep yourself safe. Please be sure to reach out to someone if you are ever struggling.

-Becca Elizabeth (A Punk With MS)

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Season Changes.

MS and the heat have been quite the unfriendly combo to my body. When the humidity gets high I usually hermit out in the comfort of my air-conditioned living room. Fall being soon is quite the relief to me (as it is probably to some of my fellow msers too)

 

For those who don’t know, people with MS are usually hot/cold sensitive and lack temperature regulation in their bodies. If a room is too hot or too cold be sure to let your MS friend know so they won’t overheat or freeze. For me personally I really can’t tell when a room is too hot/cold or if it’s just me. I even have difficulty when it comes to shower temperature. I have to emphasize: not everyone with MS has this symptom but a lot of us do.

Between Therapy, self care, and doing my best not to go completely insane I’ve had my hands full.

Despite of our hardships with weather; I decided to make a list of the little things that are enjoyable especially during a day when the temperature is too extreme for you to go anywhere.

Netflix/YouTube (I’m huge on Rhett and Link lately. I also have a huge documentary kick going on)

Coffee. Nectar of the gods.

Watching the leaves turn color (I live in beautiful New England so this is highly enjoyable)

Sitting on the couch while listening to an audiobook

Craft. Make jewelry, crochet, or pick up a different hands-on activity.

Take a nap. Who doesn’t love naps?

Have a horror movie marathon with snacks.

Write poetry or draw something you’ve been thinking about a lot.

Start a journal.

Bake homemade bread or pastries.

I hope these ideas help. Please be sure to rest and take care of yourselves especially through the upcoming weather changes. Your body will ache and maybe go haywire for a bit but everything will be okay ❤ When winter strikes be sure to come back and read this list. Staying inside to to avoid hot/cold sensitivity is the absolute worst. It can get really boring.

-Rebecca Elizabeth (A Punk With MS)

 

 

 

 

Hope.

Multiple Sclerosis is terrifying. It’s lack of control. You may wonder how to gain control of your life back. The first step is taking a deep breath and realizing that no matter how rough things get you still have a purpose in life. The depression from this struggle can be at an all-time high sometimes. Don’t let it beat you. Don’t let it win.

Be brave for your children and your significant other. If you have neither than be brave for your pets! In all honesty, the most important person that you need to be brave for is yourself. You can overcome this and you can get through this. Focus on a new project, enjoy the summer breeze, look around you and remind yourself of the beauties of being alive.

Our bodies are attacking itself but that doesn’t mean that we need to stop living. Realize your limits and reach for the stars. Don’t think that you aren’t capable of something great.

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Here’s a task. Every day I want you to find something beautiful around you. Look at it. Indulge in it. Allow it to turn your vision into something less dark. You can do this.

 

With Love,

-Rebecca Elizabeth ( A Punk With MS)

The Old Me, A Memoir

I miss the days where I didn’t have to pay attention to what I ate, or how hard I pushed myself.

I miss the times where I bathed in the sun with not a care in the world. Nowadays when I’m in the heat too long, I overheat and feel ill.

I miss not having so many doctor’s appointments and having a completely open schedule to do as I please during the days I didn’t have to work.

I miss working a lot.

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I miss the days when my body would not attack itself, the days without dealing with one migraine after another, and the days without having to take so many pills.

Today I say goodbye to the old me, and focus on today the best that I can. I will forever miss the old me, but a part of her will always remain. You can say goodbye to the old you too, it doesn’t mean that you have to completely forget her/him. Take care of yourself and try to accept your current situation  (as tough as it may be.) Dwelling on who you used to be all the time can reopen old wounds and cause you even more unnecessary pain. You can do it, I believe in you.

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– Rebecca Elizabeth (A Punk With MS)

To The Ones Who Never Feel Good Enough

This post is dedicated to the ones who always feel like they have to hold the weight of the world on their shoulders.

You are an incredible human being that puts light into the world wherever you go.

You are a shining soul, that helps others when they feel like they have fallen into an infinite darkness.

You have held others together, even when you didn’t feel put together yourself.

You are the selflessness that a lot of the world lacks.

You are truly more wonderful than you’ll ever see or know.

I can say this because I am also one of these people.

I wonder if one day  I’ll ever feel “good enough” even though I know I’m a good person.

There are days when you’ll want to give up or even feel weak, but you need to keep moving.

You need to remain strong, you’ve made it this far. Rest and recharge if you need to. You are only one person. One person can make a difference, but in order to care for others, you need to care for yourself.

The world needs your kindness, don’t let it make you dark.

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– Rebecca Elizabeth A Punk With MS

 

 

 

 

One Lovely Blog Nomination

I have been nominated for the ‘one lovely blog award’ by my friend Hannah! Check out her blog at https://baldblogging.wordpress.com/one-lovely-blog

Rules

  • Thank the person that nominated you and leave a link to their blog
  • Post about the award
  • Share seven facts about yourself
  • Nominate at most 15 people
  • Tell your nominees the good news

Seven facts about me

  1. I have a pet Colombian Dwarf hamster named “Spoopy” We got her on Halloween!
  2. I love makeup and hope to be better at applying it in the future
  3. I love creepy and weird things that most people would find too odd for them to enjoy
  4. I have an obsession with the anime “Sword Art Online” currently
  5. My favorite band is Good Charlotte (Since age 11). I met them in November last year
  6. I have a lot of tattoos, I can’t give you an exact number but I love every one of them
  7. I enjoy chai tea, it’s my favorite kind other than jasmine pearl green tea

https://dinosaursdonkeysandms.com/  https://rumpydog.com/ https://embracingauthenticityblog.wordpress.com/ https://theoilyguru.org/ spoonserendipity.blogspot.com stonedmsunicorn.blogspot.com https://brainlesionandme.com/  http://www.veryanxiousmommy.com/ https://musettemary.wordpress.com/ https://artistbybeauty.blog/ https://zebrawitch.com/ http://www.unlockedpain.com/blog/  https://hchom.com/ https://healthynappynerdymommy.com/ http://www.asocalmom.com/ are my nominees! ❤ I love all of your blogs so much!

-Rebecca Elizabeth  A Punk With MS

“I Am The Sky”A New Branch Of Support

Mental health is always a topic that carries stigma. Some people are open about their mental illnesses, and others are not. Thomas Dyer, a caring member of a small Maine community in Orono, is taking a step forward to help those who are in need of someone to talk to for mental health support across the country. He know’s what it’s like to struggle with mental health issues, and wants to give back. He started a confidential 24/7 support line called “I Am The Sky” He has even started a Go Fund Me page in hopes that people will donate to help his non-profit organization grow even further. I spoke with Thomas today, and asked him a few questions about how this idea came about, and asked him about his hope for I Am The Sky’s future.

 

Me: Thomas, I understand that the topic of mental health is something you are very passionate about. How did this organization start?

Thomas: I Am The Sky is something that I’ve wanted to start for so many years. It’s something I’ve had in my brain for far too long. I grew struggling with depression and severe anxiety, and I was surrounded by people who I felt didn’t understand. I felt so alone, and that feeling itself makes the idea of suicide that much easier. After years of this feeling I came to realize that if people like myself could come together and help one another, we could in some way save each other’s lives. And since that day, I’ve been trying to put this project together.

Me: How did you come up with the name “I Am The Sky”? Does it have any significant meaning to you personally?

Thomas: I Am The Sky has so much meaning to me. This phrase alone kept me going. A while back I was told by a wonderful person that anxiety, depression, and fear, are all clouds in the sky, and I was the sky. And no matter how cloudy it got, no matter how bad the weather was, I’d still be there and the clouds would go away, because I Am The Sky.

Me: That is the most beautiful story. I absolutely love the name. What is your mental health story? Only share what you are comfortable sharing.

Thomas: My mental health story is lengthy I won’t lie. I’ve suffered from severe depression, social anxiety, and was diagnosed with schizophrenia when I was a kid. It was all so debilitating for me, I felt like I was trapped. I found a wonderful agency that helped me learn to cope with my problems. And after years of being a client I became a worker. I felt so alive helping people, and in return helped myself.

Me: What are your hopes for I Am The Sky’s future?

I hope that someday in the near future we can become a well known source of help for those who need it. I hope that we can, even if by a little, help people feel less alone.

Me: What would you like to tell people who are reading this article right now?

Everyone who knows me knows I say this alot, Be yourself. Love yourself, everything about yourself. Be different, and create. This life has so much to offer. There will always be a struggle, someone putting what you do down, but forget them. Show them why you are here. But always remember, You’re worth it.

 

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Follow I am the sky today to help support others who are fighting mental health issues. One like, donation, or share could possibly save someone’s life. Here are the links:

I Am The Sky On Facebook

I Am The Sky On Instagram

I Am The Sky Go Fund Me

-Rebecca Elizabeth A Punk With MS