MS and the heat have been quite the unfriendly combo to my body. When the humidity gets high I usually hermit out in the comfort of my air-conditioned living room. Fall being soon is quite the relief to me (as it is probably to some of my fellow msers too)
For those who don’t know, people with MS are usually hot/cold sensitive and lack temperature regulation in their bodies. If a room is too hot or too cold be sure to let your MS friend know so they won’t overheat or freeze. For me personally I really can’t tell when a room is too hot/cold or if it’s just me. I even have difficulty when it comes to shower temperature. I have to emphasize: not everyone with MS has this symptom but a lot of us do.
Between Therapy, self care, and doing my best not to go completely insane I’ve had my hands full.
Despite of our hardships with weather; I decided to make a list of the little things that are enjoyable especially during a day when the temperature is too extreme for you to go anywhere.
Netflix/YouTube (I’m huge on Rhett and Link lately. I also have a huge documentary kick going on)
Coffee. Nectar of the gods.
Watching the leaves turn color (I live in beautiful New England so this is highly enjoyable)
Sitting on the couch while listening to an audiobook
Craft. Make jewelry, crochet, or pick up a different hands-on activity.
Take a nap. Who doesn’t love naps?
Have a horror movie marathon with snacks.
Write poetry or draw something you’ve been thinking about a lot.
Start a journal.
Bake homemade bread or pastries.
I hope these ideas help. Please be sure to rest and take care of yourselves especially through the upcoming weather changes. Your body will ache and maybe go haywire for a bit but everything will be okay ❤ When winter strikes be sure to come back and read this list. Staying inside to to avoid hot/cold sensitivity is the absolute worst. It can get really boring.
-Rebecca Elizabeth (A Punk With MS)